Optimal data availability is crucial for continuous improvement and innovation in healthcare. In moving toward learning health systems, data need to be constantly generated, reused and learned from. Furthermore, to ensure equitable care, it is essential to have comprehensive and unbiased health data that accurately reflects the whole population, including those who are underserved or difficult to reach [1,2]. At the same time, it is imperative to uphold patients’ rights to control the use of their health data and protect their privacy [3].
